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Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis

Institute of Child Health, University of Birmingham and Diana, Princess of Wales Children's Hospital, Birmingham, UK

Karen L. Shaw, PhD, BSc

Taunton R. Southwood, FRCP, FRCPCH

Institute of Child Health, Diana, Princess of Wales Children's Hospital, Birmingham, UK

This article describes the development and initial evaluation of an evidence-based transitional care programme recently implemented in a multicentre controlled trial in the United Kingdom. The individual components of the programme are described. Evaluation of the acceptability and utilization of these components employed questionnaires administered to users (adolescents with juvenile idiopathic arthritis and their parents) and providers (rheumatology health professionals). The results confirm the acceptability and utilization of the programme components in addition to further innovative developments during the course of the study. In conclusion, the evidence-based transitional care programme components reported here are acceptable and useful to both user and provider and are potentially feasible in clinical practice in a revised format.

Key Words: adolescents • chronic illness • juvenile idiopathic arthritis • transition

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